Annual Child Count of Students with Deafblindness — 2021
Our funder, the U.S. Department of Education, requires CDBS to conduct an annual child count to determine the number of children/students in California who are deafblind (i.e., children / students who are both blind/visually impaired and Deaf/hard of hearing). Our charge is to identify every child / student from birth to age 22 who is deafblind, regardless of their IEP category, as most students with deafblindness fall under a variety of other designations. This information is very important as it impacts policy and practice at local, state, and national levels. Thank you for your help.
Who should be Included on the Deafblind Census?
Many people who are deafblind have some usable vision and/or usable hearing. It is important to understand that persons who are completely deaf and totally blind, like Helen Keller was, make up only about six percent of the total group that is considered to be "deafblind." CDBS uses a functional definition of deafblindness:
If an individual (birth through age 21) has combined hearing and vision problems that are significant enough to require considerations (such as specialized adaptations, modifications, and strategies) when presenting information or interacting with the child, then that individual is considered eligible to receive CDBS services and should be included on the deafblind census.
For purposes of the annual census, a person is considered to be deafblind if they are both blind/visually impaired and Deaf/hard of hearing, ranging from mild to severe, or they function as if they have both a hearing and vision loss based on inconsistent responses to the environment or inconclusive responses during hearing and vision exams. A conclusion that a child is functionally deafblind may be based on an educational evaluation for purposes of initially reporting that child on the deafblind census. Please remember that regardless of the presence or absence of additional disabilities, children with combined hearing and vision problems should be included on the deafblind census. Students do not have to meet state or local criteria, since this census is separate from the state count, and most children in California with both hearing and vision problems are, in fact, identified on their individualized educational program (Part B of the Individuals with Disabilities Education Act child count) in categories such as multi-disabled, intellectually disabled, visually impaired, or deafness.
In addition, students with a mild hearing loss and mild vision loss should be included since a combined mild loss of both senses can create an adverse effect on educational success.
2020-2021 Child Count / Census Forms and Deadline — Abridged due to Pandemic
We normally mail forms containing information on students reported to us last year for you to review and confirm information. We will be providing alternative means of verifying information for this year during the pandemic when most LEAs / districts in the state are not easily accessing all of their buildings or student records.
If you have provided California Deafblind Services any census documents over the past 3 years, we will email questions and coded information to the Special Education Director (or other appropriate staff we have been in touch with) for your County / District / LEA to help us verify if any updates are needed or if there are any new students to report. Please expect these emails by February 27th, 2021.
If your offices (County / District / LEA) have received no emails by the end of February, 2021 and you do have students in your district that do qualify as deafblind as described above, please contact our Census Coordinator Brian Devereux at the email address below.
Local educational agencies that report no children or an unusually low incidence of children with deafblindness (as compared to the nationwide incidence) may be contacted by CDBS staff to assist with identification and child find activities.
Note: All information on these forms is to be treated as confidential. Please return census forms by March 30, 2021, to the California Deafblind Services Census Coordinator, Brian Devereux: firstname.lastname@example.org
Questions? Please contact Brian Devereux at email@example.com
FREQUENTLY ASKED QUESTIONS:
- When were the packets emailed? The coded lists and questions are are emailed by February 27, 2021.
- When are forms due back? Please email back responses or information on new students/children before March 30, 2021.
- How do I send back the new or revised forms or get answers to questions not answered here?
Please email: firstname.lastname@example.org
- Why did my LEA (Local Education Agency) not receive an email about past/current students? LEAs that did not report any children with deafblindness over the past two years were not emailed a census packet this year. If you represent an LEA that did not report students who are deafblind and now have a student(s) to report, please visit the census page of the CDBS Web site at https://www.cadbs.org/census/. Here you will find documents to assist you in reporting.
- Who should complete the form/answer questions? Ideally the census form should be completed by the “best service provider,” someone who knows and works closely with the child. However, anyone with access to the child’s file can complete the form, including educators, school health personnel, family members, and/or CDBS staff.
- Do I need to sign the form? Yes. If you are completing or confirming a form, please sign or print your name on the bottom of page two. This person can be different from the “best service provider contact” but should be someone we could get in touch with if there is a question about the form. If you are answering emailed questions and not completing a full form, please indicate who answered the questions. During pandemic-abridged the online exchange of 2021, the person attesting to the information and sending the confirmation is considered to have signed-off on the information.
- What if we don’t have any deafblind students in our district/county/SELPA at this time? While it is possible that smaller Local Education Agencies may not have any students with combined hearing and vision problems, statistically we know that there should be about 1.56 children who are deafblind for every 1,000 receiving special education services. CDBS field staff are available to assist you in your identification efforts.
- What if I don’t know all the information requested on the form for a particular student? Please refer to the child’s cumulative file if possible and/or the IEP.
- Does reporting a child on this census obligate our school program to provide services such as vision, hearing, orientation and mobility? No. Individualized needs and services are determined by the family and educators through the IEP or IFSP process.
- Why is the census so important? Funding for specialized services to this population is dependent on having accurate information about how many infants, children and youth in California have both hearing and vision problems. When the state and national legislatures approve funding—and state and federal agencies allocate the funds—census information is used to determine priorities and needs.
- What exactly is meant by the term “deafblind”? CDBS recognizes that this is a difficult question for families and educators, and that the federal definition can be confusing. To make it more clear, CDBS uses a functional definition of deafblindness: If an individual (birth through age 21) has combined hearing and vision problems that are significant enough to require considerations (such as specialized adaptations, modifications, and strategies) when presenting information or interacting with the child, then that child is considered eligible to be included on the census and receive services from our project.
- What if a child has multiple disabilities that happen to include vision and hearing problems? Most children who are deafblind have additional disabilities, including intellectual disabilities, orthopedic impairments, health impairments, etc. Please complete a census form for all students who have hearing and vision problems, regardless of the presence or absence of additional disabilities.
- What if the hearing and/or vision problems are cortical in nature? Please do include children with sensory impairments that are cortical in nature—such as cerebral (or cortical) visual impairment, central auditory processing disorder, and/or auditory neuropathy—on the census. These students usually require adaptations and modifications to their programs in order for them to succeed. In addition, these hearing and vision problems often need to be considered when developing effective, formal communication systems for these individuals. When in doubt, refer to the functional definition of deafblindness above.
- What if deafblindness is not the student’s primary disability on her or his IEP? It doesn’t matter which primary disability is identified on the IEP. While California Deafblind Services would like to see all students who have vision and hearing problems identified as deafblind on the IEP (and there are federal regulations regarding this issue), we know that most students who are deafblind are identified under other federal/state primary disability categories, such as “intellectual disability”, “multiple disabilities”, “hearing impairment”, “visual impairment”, etc.
- Does a child have to meet my agency’s criteria for vision impairment and/or deafness/hard of hearing to be reported on this census? No. Eligibility for vision and/or hearing impairment services varies from district to district, and definitions are interpreted in many different ways. For example, students with only a mild hearing loss and vision loss should be included in the deafblind census count since a combined mild loss of both senses can create an adverse effect on educational success. In addition, students who are deafblind do not have to meet state criteria since this census and the state count are separate entities (the state count being the number of students in California for whom deafblindness is marked on the IEP as their primary disability).
- Why is a child’s etiology requested on the census? Knowing a child’s etiology is important for a number of reasons. Maintaining this database allows CDBS staff to make important connections between families. For example, parents of a child with CHARGE syndrome might contact CDBS to ask if there are other parents of children with the same syndrome in their area. The census allows CDBS to make these family-to-family connections. Another important reason to know etiology is that the California census information is combined with data from around the country to determine which causes of deafblindness are on the increase or decrease, if there are geographic clusters of students with similar etiologies, etc.
- What are intervener services and why are they now on the census? In educational environments, intervener services are provided by an individual, typically a paraeducator, who has received specialized training in deafblindness and the process of intervention. An intervener provides consistent one-to-one support to a student who is deafblind (age 3 through 21) throughout the instructional day. This new question has been added to the bottom of page 1 of the census so that state and federal governments can examine the need for intervener-specific training and/or regulation initiatives.
- How can I get extra copies of this FAQ, the census guide, and/or the census form? Extra copies of all census materials can be obtained on our website at: https://www.cadbs.org/census
The contents of this website were developed under a grant from the US Department of Education, #H326T180015. However, those contents do not necessarily represent the policy of the US Department of Education, and you should not assume endorsement by the Federal Government. Project Officer, Susan Weigert.